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Committee hears testimony about Beatrice center

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By NANCY HICKS / Lincoln Journal Star

Thursday, Aug 21, 2008 - 08:20:56 pm CDT

Sandra Ham’s teenage son Ian started running away when he lived in Lincoln group homes.

Once he caused a ruckus at a convenience store late at night, his mother said. The police who responded thought he was on drugs. They  stepped on his bare feet while handcuffing him.  Then they noticed his medic alert bracelet.

The officers returned Ian to his group home, where the staff member responsible for watching the clients was asleep.

Story Photo
Patty McGill Smith, past president of The ARC of Nebraska, testifies Thursday before a special legislative committee created to investigate problems at the Beatrice State Developmental Center. (AP Photo/Bill Wolf)

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The story so far: BSDC

In September 2006, federal inspectors found serious problems at the Beatrice State Developmental Center, home to about 285 people with serious develop...

It was just one example Ham presented Thursday to a Legislative committee of how the Beatrice State Developmental Center is the best place for her son and others like him.

About a dozen parents and siblings of people living at BSDC got their chance to defend the place their loved ones call home during the daylong legislative public hearing. State senators on the committee also heard from some who want the center closed.

Ham told the committee of another time when Ian left at night, in the dead of winter. He was located after an intensive search — with help from police and the local TV station — miles from his home.

Then there was the day a group home staff member was stopped for drunk driving, with Ian in the car. This was the same staff member who was responsible for Ian’s blood testing, his insulin dosage and his meal preparation, Ham said.

After three years of living in  group homes run by two different community agencies, Ham finally got Ian into BSDC — where there is always staff on duty, where there is a nurse on call, where there is constant oversight, she said.

“He now has the care that group homes could not or would not provide,” she told the committee.   

It is the safest place for her son and others with more demanding medical needs and who exhibit at-risk behaviors, she said.

Other supporters praised the state institution, the long-term loving staff members who watch over adults with the capabilities of a toddler, the special program for teens and adults with serious behavior issues, the community atmosphere where everything from the doctor to the swimming pool is just a short walk away.  

Some told horror stories about community programs where staff members slept while their children wandered the streets, or watched TV rather than watch over the residents. Where there was not enough staff to give high-need clients one-on-one supervision, where staff weren’t able to handle people with serious behavior or medical problems.

And they suggested community programs should have the same scrutiny that occurs at Beatrice, where investigators from several federal agencies have spent weeks observing life at the center.

The reports from those agencies citing serious, specific instances of abuse, neglect and staffing shortages at BSDC led to creation of the special committee, with   Omaha Sen.  Steve  Lathrop as its chairman.

The state faces the loss of about $28.6 million a year in federal funds for the center, which currently cares for 263 Nebraskans with serious developmental disabilities. The center is also  being monitored under a federal court order.

Senators also heard Thursday from some who want BSDC closed.

Beatrice is an “outmoded, outdated institution” that “violates the rights of people living there,”  said Mary Angus, lobbyist for the ARC of Nebraska, an advocacy group for  people with disabilities and their families and friends.

“We believe the reasons BSDC has remained opened are political. ... Because it is best for the community, not because it is best for the residents,” she said.

People with severe disabilities also live successfully in local community programs, she said. Sixty percent of the adult Nebraskans with profound mental retardation are served by such programs, she noted.

BSDC uses up 18 percent of the state’s funding for developmental disability services, but serves only 6 percent of the people getting services, she said. It “misuses scarce resources.”

Chairman Lathrop commented on the obvious philosophical split between Beatrice center supporters — who want to make certain an institutional choice exists — and groups like ARC of Nebraska — that would like to see the Beatrice campus eventually closed and its $52 million in state and federal funding used for community programs.

“It seems to me this is not a black and white issue. That there is room for both (community programs and institutional programs),” Lathrop said.

Angus gave another option. Everyone could be served in community programs if the state increased the quality and the breadth of community services, she said.

Reach Nancy Hicks at 473-7250 or nhicks@journalstar.com.


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Nina wrote on August 21, 2008 4:40 pm:
" Friday's hearing should be the most enlightening, because I'm convinced short-staffing or inability to hire sufficient qualified staff is at the heart of the matter. Last I heard, Beatrice was still using temporary staffing agencies to fill in. Sad part is, the staffing issue will be the most difficult to resolve. "

Huh wrote on August 22, 2008 6:34 am:
" Having been to BSDC on several occasions, I had the impression that some of the states most profoundly developmentally disable citizens where cared for there. These people will definitely have greater costs associated with there care. So when someone is quoted as saying that BSDC “misuses scarce resources" because it uses up 18 percent of the state’s funding for developmental disability services, but serves only 6 percent of the people getting services, I think I am being misled. I wish the world would stop playing politics with the lives of people that it doesn't understand. "

Herewegoagain wrote on August 22, 2008 1:55 pm:
" We spend so much time on BSDC versus community-based services that we prevent ourselves from completing a reliable root cause analysis of the statewide system of services. The problem is gaps in service quality and there are examples in both BSDC and community-based services.The discussion should be about the best design for a continum of services. Just as acute medical hospitals provide a different level of care than out-patient clinics, BSDC's level of care is different community-based level of care. Some people need BSDC, some need transition services and some need community-based services. Some people need the ability to move back and forth as needed. I expect that system redesign may sound too much like something that may cost more so we will bury the idea and keep the focus on which is better, BSDC or community-based. Too bad, there may be some design efficiencies out there that would actually make both services less expensive and more appropriate to meeting the needs of Nebarskans with developmental disabilities. "

One Parent wrote on August 22, 2008 6:29 pm:
" Mary Angus stated “We believe the reasons BSDC has remained opened are political. ... Because it is best for the community, not because it is best for the residents” . Could it be that Ms. Angus and Ms. McGill Smith want BSDC closed for political reasons? Is the real issue money? It appears to me that money is more the issue than the needs of the BSDC residents.

I agree with Herewegoagain in there is no "one size fits all" solution to this issue. We need to look at a continuum of care in Nebraska that will meet the needs of the Nebraskans with developmental disabilities. "

current employee wrote on August 22, 2008 9:30 pm:
" As a BSDC employee who has also worked in community based services, I can say that there is a place for both BSDC and community programs. Placement should be based on the individuals needs, everyone should be advocating for what is best for the person. I work with individuals with mild mental retardation and sometimes severe mental health issues, that can result in fairly significant violent behaviors. I've been hurt on several occasions. I am not complaining about that, because I know it's part of my job and what I've been trained and taught to deal with. It's also part of my job to teach these individuals better coping skills and better life skills so that they can eventually be contributing members of society. People such as Mary Angus are so uninformed when they call for closing BSDC. I doubt she would appreciate a violent individual living next door to her if he is not able to manage his bahavior effectively. Community based programs are not set up to handle those kind of things. Our goal for everyone at BSDC is to live in the least restrictive setting possilble, with safety being the first priority, theirs and the community's. I am proud to be associated with BSDC and I get up every morning and go back because my co-workers and I are doing good things, fixing the problems and making a differnce in people's lives. "

WHAT wrote on August 23, 2008 9:55 am:
" Hope Chairman Lathrop can get some accountability from HHS. Seems like abuse and neglect needs to be addressed NOW. "